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Teachers' Notes on Euthanasia
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Aim

For students to know and understand arguments for and against the legalisation of euthanasia and some of the ethical and moral questions this raises.

Issues for Consideration and Discussion

Euthanasia The deliberate ending of the life of an individual either by act or omission, usually out of a motive of misplaced compassion.
Voluntary Euthanasia The killing of an individual at their request.
Do we have the right to end our own life? Attempted suicide is not punishable under law – recognises the need for treatment of depression or mental illness, but there is also no legally established right to end your own life. In fact the opposite is true; international charters of human rights recognise an inalienable right to life; it cannot be given up.
Do we have a right to die? Dying cannot be considered a legal right; it is instead something that is inevitable for every human being. Legalised euthanasia supposes a right to be killed at a time of your choosing, even though this goes against the internationally recognised human right, the right to life.
 

Every right implies a duty. The right to be killed would imply a duty to kill – on the part of the doctor?

What consequences might there be for doctor-patient trust and the morale of the medical profession and how it views its role in society?

Suicidal able-bodied person Vs Suicidal disabled person If someone attempts suicide or says that they want to die we recognise that they have a need for treatment of their depression or mental illness. If euthanasia was legalised for people living with illness or disability, then when someone with a disability says that they want to die we might agree to their request rather than offering treatment for depression or mental illness, or exploring the reasons why they want to die and what can be done to change their situation.
Ethical Considerations

In 2003 a British couple travelled to Switzerland for assisted suicide. There was outrage because the couple were not dying or suffering from any disabilities or terminal illnesses. Does this show a difference between attitudes towards those who are ill or disabled and those who are considered to be able-bodied?

No man is an island – all our actions have consequences for others and for society? The voluntary euthanasia of an individual has consequences for others in society?

Law on euthanasia would outline criteria for those to be allowed the right to die

If the law categorises particular individuals in society e.g. people with particular disabilities, as having the right to be killed does this involve the law and society passing judgement on the value of the lives of people with such disabilities? Might some who have such conditions feel that by giving them the right to be killed the law is saying that they should want to die?

Might such a law increase the fears and vulnerability of individuals categorised by the law and make them feel a burden on society?

 

Any law to legalise euthanasia would be very general. It would be based on particular medical conditions and illnesses. Every person is an individual and so even if others have a common medical condition, their own circumstances, e.g. pain, fears, emotional needs etc, will be individual to them.

No law can consider the individual circumstances of each person. On the other hand doctors, family and carers are in a position to assess and attend to the individual needs of their patients/loved ones.

If there was legalised euthanasia and a patient requested euthanasia would the doctor be less likely to consider and address the patient as an individual with his/her own needs and concerns, it being easier to simply grant his/her wish for death? Would the doctor look past the physical condition, for which the law permits euthanasia, to the emotional needs of the individual?

Disability Attitudes: “I think if people with disabilities or terminal illnesses want euthanasia then the law should allow them their wish”.
  Can we make such statements about disability and still claim to respect people with disabling conditions? Does such a statement consider the lives of those with disabilities or terminal illnesses to be of lesser worth than the lives of the able-bodied?
Dignity Pro-euthanasia perception that disabling and terminal conditions are undignified. This is a subjective quality of life judgement.
Ethical Considerations

"Dying with dignity" implies that those who are ill or disabled can only find dignity in death.

What is dignity? How do we find dignity?

If we define dignity as self-respect can this be undermined by the way others treat and consider us?

Dignity is found in the way others treat us?

Value To consider a life no longer worth living is to consider all human beings on the basis of their abilities/usefulness. This viewpoint considers our value to be found in what we can or cannot do for ourselves, for others, and for society. On this measurement our value increases from birth until maturity and then decreases as we grow older until the point of near death.
Ethical Considerations

If this is how society measures value and we are perceived as a burden on those around us e.g. it may be expensive to care for us, we might be seen as having surpassed the point of usefulness and so our life no longer has any worth in the eyes of society.

How else might we consider value? All human beings have an inherent value derived from their humanity and therefore our perceived "usefulness" is irrelevant as a measure of what we contribute to society. All human beings and all human lives are valuable. People who request euthanasia have lost sight of the value of their lives. Everyone should be helped to rediscover and reaffirm their value as human beings.

Palliative care "No one wants to die in pain".
 

Palliative care: hospice care and the work of experts in pain relief to ensure that people do not die in pain. Hospice doctors say they can relieve 95% of physical pain and can help 100% of patients (cf Statement by Dr Robert G Twycross, Macmillan Clinical Reader, Oxford University, 23 July 1997). Hospice and palliative care is about comforting and making comfortable those who are terminally ill or who have entered the dying process. It is also about caring for a person’s emotional as well as physical needs.

The World Health Organisation (WHO) describes palliative care as:

  • provides relief from pain and other distressing symptoms;
  • affirms life and regards dying as a normal process;
  • intends neither to hasten or postpone death;
  • integrates the psychological and spiritual aspects of patient care;
  • offers a support system to help patients live as actively as possible until death;
  • offers a support system to help the family cope during the patients illness and in their own bereavement;
  • uses a team approach to address the needs of patients and their families, including bereavement counselling, if indicated;
  • will enhance quality of life, and may also positively influence the course of illness;
  • is applicable early in the course of illness, in conjunction with other therapies that are intended to prolong life, such as chemotherapy or radiation therapy, and includes those investigations needed to better understand and manage distressing clinical complications.

Does the lack of hospices and pain clinics in Holland demonstrate that legalised euthanasia undermines the development of good palliative care as an alternative to euthanasia or dying in pain? (Mark Kennedy "Canada must help dying to go with dignity" at the Second Joint Clinical Conference and Exposition on Hospice and Palliative Care, "Palliation and Passion in the End of LIfe", held in Orlando, Florida, 23-26 March 2001).

Only 5% of patients in Holland requesting euthanasia cite physical pain as the reason (Van de Wal G, van Eijk J Thm, Leenen HJJ, Spreeuwenberg L "Euthanasia and other medical decisions concerning the end of life", Health Policy, 1992; 22 [suppl 1 & 2] in British Medical Journal, 21 May 1994).

It was reported in The Lancet medical journal in 2001 that
“Although the traditional idea is that such deaths are wished for as a means to avoid pain and suffering, studies suggest that this explanation is insufficient. In fact, depression, hopelessness, psychological distress, and need for social support are all factors.” (Origins of the desire for euthanasia and assisted suicide in people with HIV-1 or AIDS: a qualitative study The Lancet 2001; 358:362-367). The authors reported that although this study was confined to HIV/AIDS patients, it nonetheless reflected the research on patients with other types of illness.

The WHO also recognize that “Palliative care has promoted wider application of the principles of pain and symptom control. However, more work is needed to train all professionals in assessing, monitoring and treating pain and distressing symptoms in all settings.” (WHO Palliative Care – The Solid Facts, Elizabeth Davies and Irene J. Higginson Eds., 2004). Part of the answer to helping those seeking euthanasia is better training of health professionals in providing appropriate end-of-life care.

Does this raise the question of health authorities failing to treat psychological illness such as depression with euthanasia being seen as an easier option? In the Netherlands a woman with no physical illness who was suffering from depression was given euthanasia ("Killing the Psychic Pain", Time, 4 July 1994). The doctor involved was cleared of any wrongdoing and so this legitimised the killing of depressed patients. Those who are living with a disability and who, as a result of depression, ask for euthanasia may also have their request granted rather than being offered treatment for their depression.

 

Striving to keep patients alive Opposing euthanasia means recognising that life has a natural end point. It does not mean keeping dying people alive as long as possible using every technological means available. It does mean making every effort to ensure that the person is well cared for and kept as pain-free and comfortable as possible.
 

All patients have the legal right to refuse treatment that is excessively burdensome.

The best interests of a patient include not causing harm to the patient.

Doctors can advise patients on the withdrawal or withholding of treatment that is a burden to a dying patient or where it has become futile. Doctors recognise that there is a point where their role changes from curing to caring, usually when the patient has entered the dying process.

Assisted food and fluids

Assisted food and fluids is when a person receives food and fluids by feeding tube most likely through the nose by naso-gastric tube or directly into the stomach through an opening in the wall of the abdomen called a gastrostomy or PEG tube.

 

In 1993 a court ruled that food and fluids delivered through a feeding tube could be withdrawn from a person in a persistent vegetative state (PVS) [This is better described as a persistent non-responsive state]. This case resulted in assisted food and fluids for the first time being considered medical treatment rather than basic care.

This judgement was a part of case law in England and Wales and meant that the precedent was set for any such case to be awarded a similar court ruling for the withdrawal of assisted food and fluids. Another judgement in Scotland, in January 1996, for the withdrawal of assisted food and fluids from a PVS patient again set this precedent in Scottish case law.

The Mental Capacity Act (2005), which applies to England and Wales means that these previous judgements regarding the withdrawal of assisted food and fluids have now been enshrined in statute law and can also be extended to incapacitated patients.

The Adults with Incapacity (Scotland) Act 2000 however does not enshrine in statute law assisted food and fluids as medical treatment that may be withdrawn.

People in a PVS are not dying, do not require life-support machines, their bodies and organs still function normally and they can derive nutrition and hydration from food and fluids. However, people in a PVS do have difficulty swallowing and so need to receive food and fluids through a tube. Withdrawing food and fluids from people in a PVS results in their death through starvation and dehydration.

People in a PVS can neither request nor consent to withdrawal of assisted food and fluids. Where this is withdrawn these are cases of non-voluntary euthanasia.

The above court case resulted in assisted food and fluids for the first time being considered medical treatment rather than basic care.

Ethical Considerations

Patients do not have the right to demand medical treatment, it is the doctors decision what treatment a patient receives. If assisted food and fluids are considered medical treatment then they can no longer be considered part of our right to basic care.

Should food and fluids administered through a feeding tube be considered medical treatment rather than basic care to prevent starvation and dehydration?

To argue that people in a PVS have no benefit in receiving food and fluids is to argue that they have no benefit in being alive?

Food and fluids given through a feeding tube is just a way of assisting the receipt of food and fluids and is no different from helping an incapacitated person to eat by spoon-feeding him or her.

Questioning Euthanasia

Can anyone really make a choice that is free and voluntary, a choice that is free from all influences?

Can the choices we make always be considered legitimate simply because we have chosen them, even if they raise ethical and moral problems? Is choice the only important consideration?

Do any of us truly make choices in isolation that have no effect or influence on others?

Would legalising euthanasia change the way that we value life in our society i.e. can we maintain respect for the sick and people living with disabilities if we agree that they have the right to be killed and therefore that their lives are not worth living or are expendable?

If euthanasia was legalised what consideration should be given to the rights and concerns of the doctors who would be required by law to carry out euthanasia for those who want it?

Fears over voluntary euthanasia laws being abused are irrelevant; all euthanasia is unethical whether it has been consented to or not. The danger of introducing legalised euthanasia is not that it might be abused but that it will further erode our respect for the value of human life?

How much should economics factor in the case for euthanasia? i.e. an increasingly aging population means that the cost of care for the elderly continues to rise.


SPUC Scotland
Revised June 2004
Jacqueline Dalrymple

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